亲身经历皮肌炎从病发到康復，治疗全过程：全身大检查，
1.     病发期：
2.     全身大检查：做扫描（GT),再做一个核磁共振（MRI)，
3.     治疗期：渣药膏，食药、
我的“红班病”疹所医生什么都不知道，我这种他们照书本上做，什么引起的不知道，可能是太阳晒的，可能打新冠第五针另加疱疹针引起的、以后新冠每一针管六个月，最近又要打第六针了，现在我还没决定打不打。食东西过敏的，虫子咬的，花草过敏的，等等，等等都有可能，这药膏不成下次换就是了，药膏换完就无药可治了，所以说疹所医生最无料。从5月13日打针，6月1日看GP，到儿子回家两个月了，先面部开始，现在到手脚了，疹所医生什么也不知道。我以前说过，疹所医生最没料，的确如此，什么都照书本上查。疹所医生就是给药，这不成就换，没别的。小医变得大病，大病只能等死，药物这些东西，少用为妙，这里医生没得揀，除非换居住地方，不然永远是他，也只有他写纸才能进医院。
医生说太阳晒的我是不相信的，面部太阳晒而身体穿了衣服怎晒？所以两周后再去疹所，这次到了疹所医生换了第二个人，他翻查电脑资料一看说太阳晒的，他也说可能是太阳晒的，这次这个医生用上了“可能”，他说是可能，不是肯定。所以又给了另一种药力比较重的药膏，说再渣上两星期，他说如果还不见效就不要再來了，打电话來再给其它药膏。这里是不兴打针的, 用了第二次给的药力比较重的药膏后还是不见效，所以我认为是热毒，最近每周一次必胜客，熟客，鸡翅膀，买一送一，薯条太辣。药膏不见效我自己治，冲黄莲水喝和用黄莲水渣，白醋也用上了，今天准备去找中医看看这些红班究竟是什么形成的，是什么病。
最初在疹所GP看了三次(时隔两周)，在第二次见GP的时候刚好医生儿子回来，这一次有他传话方便多了，医生对医生要谈什么都对口，由于最初给的药膏不见效，我儿子建议验血(这是第一次抽血)，另换了一种药力较强的药膏。同时要求GP写纸看皮肤科，血也验过了，血液没问题，我儿子要求看皮肤科，那都一样，没人事没背景，只能照章办事，预约，有儿子这种关系排期算快了，还别说有个医生儿子还挺管用，要不然不知又要排期排多久呢，我不用排期隔天到大医生检查。
验血：
Bloods tests: Ro antibody was positive. Also Anti-TIF1 gamma antibody. 
The CT is going to be referred to respiratory MDT to review the images to advise what to do next about the lung nodule. Might just be repeat CT in 3 months but need to wait for MDT outcome. 
Dermatologist Dr Becher, her concern is that she feels rash is a bit worse and muscle weakness/swallowing might be due to dermatomyositis itself. 
She has discussed with the rheumatologist. To start oral steroids (prednisolone 50mg daily) - she will write to GP. Can stop hydroxychloroquine. Will arrange review in clinic with dermatologist in 1 week. 
She will also refer to speech and language therapy (SALT) to assess the swallowing.
Rheumatologist (Dr Reed) is going to bring appointment with forward so can see sooner. MRI appointment stays the same.
扫描：打了三针，打入显液济，右手打两针进不去，才在左手打一针。扫描一点反应都没有，医生提前说会有反应，或头晕或心闷，还可能嗅到金属味。我感觉什么都没有，医生说我有点和别人不同。扫描是在圆筒內也是睡着推进去，睡在床上，打入显影水，然后推进圆筒内，吸气后停十秒，人在筒入只看贝一圈圈红线，大概五分钟左右完成全过程，我是检验内部器官，这一套东西做完后相信会有结果。
CT Thorax abdomen pelvis with contrast
Clinical History :
URGENT SUSPICION OF CANCER. 3 week history of florid rash in keeping with dermatomyositis. Recent onset of proximal muscle weakness also in keeping with dermatomyositis. ? Malignanncy as cause for rapid onset of rash and muscle weakness associated with dermatomyositis
Chest:
No enlarged supraclavicular, axillary, mediastinal or hilar lymph nodes by CT size criteria.
No focal collapse or consolidation. A linear pulmonary nodule measuring up to 6.5 mm in the left upper lobe is noted.
No focal lung mass.
No pleural or pericardial effusion.
Abdomen/pelvis:
The liver demonstrates a smooth contour. No suspicious focal liver lesion.
Thin-walled gallbladder. No calcified gallstones.
Unremarkable appearances of the adrenal glands, kidneys and pancreas.
No small or large bowel obstruction.
No focal bladder lesion. 5 mm calculus noted at the insertion of the urachal remnant.
No ascites.
No enlarged inguinal, pelvic sidewall or retroperitoneal lymph nodes by CT size criteria.
Small fat-containing umbilical hernia.
Bones:
No destructive osseous lesion. T12 and L2 wedge compression fractures noted.
Impression:
No evidence of malignancy. 6.5 mm linear left upper lobe pulmonary nodule requires a CT chest follow-up in 3 months. Other incidental findings as described above.
Bloods tests: Ro antibody was positive. Also Anti-TIF1 gamma antibody.
The CT is going to be referred to respiratory MDT to review the images to advise what to do next about the lung nodule. Might just be repeat CT in 3 months but need to wait for MDT outcome.
Dermatologist Dr Becher, her concern is that she feels rash is a bit worse and muscle weakness/swallowing might be due to dermatomyositis itself.
She has discussed with the rheumatologist. To start oral steroids (prednisolone 50mg daily) - she will write to GP. Can stop hydroxychloroquine. Will arrange review in clinic with dermatologist in 1 week.
She will also refer to speech and language therapy (SALT) to assess the swallowing.
Rheumatologist (Dr Reed) is going to bring appointment with forward so can see sooner. MRI appointment stays the same.
做核磁共振:（MRI)
做核磁共振半个小时，核磁共振也做了，核磁共振检查什么我不知道，做这些可能我儿子叫做的，可能，这点皮肤病有何要做这些？从来都没检查过，好在不要钱，如果要钱我就不做了，英国唯一好处也就是一两项了，读书免费，（苏格兰），英国要，（上大学），英国药费也要，苏格兰不要。我几十年都没出现这些问题，弄伤腰也是拖到好的，这次真给他弄到精疲力弱了，总之全身大检查，扫描查内脏，共振查关节。看看扫出啥玩意來。看來真有可能拿我來做试验，看來我这病是一个个例，医院用來存档、备用。我除非不病，病都病到衰过人。
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贴主:花名雞仔于2023_09_30 11:04:20编辑